Useful Resources

There are lots of very useful resources from around the world for individuals living with cerebral palsy and their families.

Cerebral palsy is the most common physical disability in children. There are currently 17 million people in the world who have cerebral palsy.

In Wales no one knows how many people with cerebral palsy there are. This is why we are co-leading a project to develop a cerebral palsy register for Wales. https://cerebralpalsyregister.wales. Using data from other countries we think there are around 1800 children in Wales who have cerebral palsy and that approximately 70 babies are born every year in Wales who will be diagnosed with the condition.

The following are websites you may find useful:

The Canchild website has some excellent resources and a great team.

https://www.canchild.ca/

https://www.canchild.ca/en/resources/264-cp-the-brain-video

https://canchild.ca/en/the-icf-for-parents-p-icf

https://www.canchild.ca/en/research-in-practice/f-words-in-childhood-disability

https://www.canchild.ca/en/resources/266-letting-go-at-least-a-little-bit

https://www.canchild.ca/en/resources/268-pain-prevention-and-treatment-in-children-and-young-people-with-cerebral-palsy

https://canchild.ca/en/resources/237-motor-growth-curves

https://canchild.ca/en/resources/23-if-i-knew-then-what-i-know-now-parents-reflections-on-raising-children-with-cerebral-palsy

Pencru

http://www.pencru.org/evidence/

Scope

https://www.scope.org.uk/

Cerebra

https://cerebra.org.uk/

Nice guidelines

Nice spasticity guidelines

https://www.nice.org.uk/guidance/cg145

Nice managing cerebral palsy in under 19’s guidance

https://www.nice.org.uk/guidance/ng62

World cerebral palsy day

https://worldcpday.org/